This is a chronicle our everyday life as we live, laugh and love raising our teenager, our toddler and our special needs baby. Normal isn't always what it seems...

Saturday, November 26, 2011

Happy Thanksgiving!

As is normal for us I realize this post is a couple of days late but I couldnt let the week finish out without this post. We have SO much to be thankful for this year. I've gone back over the last year several times this past week. Lydon has made so much progress in the last twelve months. He is doing amazingly well overall. He still has his chronic issues but so far this year we've been able to stay home. We've only been in-patient this year a few times which is a far cry from the months we spent in-patient last year. We have gone from this..

to this...

To this!
So, yes despite all of the challenges, we've obviously had a great year!

We had a wonderful Thanksgiving,

with each other,

and lots of family! On medical note, we have seen some improvement since starting the new supplements and increasing his Amitriptylline. He's seemed a little off with his stomach and coloring of late but overall very stable. We got a call that the results from the specialized labs we sent off in June have finally come in!! I havent been able to speak to the doctor myself yet but from my conversation with the nurse, it sounds like we may have some answers! Finally....some answers! Cant even begin to describe how just the idea of that thought seems!! We have an appointment on Monday with Pulmonology. We have a dental appointment which we may put off until Jan. Other than that, we are very much looking forward to the next month of more time off together. Here's to some cold snuggle weather and no colds, viruses or infections of any kind!!

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