This is a chronicle our everyday life as we live, laugh and love raising our teenager, our toddler and our special needs baby. Normal isn't always what it seems...

Saturday, March 24, 2012

Update 8

Well, sure am glad i didnt hold my breath for a Friday discharge because we are still here! I didnt have much faith in everything being pulled together by then. Nevertheless, things are looking pretty promising for Monday. We are still on a significant amount of TPN but we were able to drop it down to 18 hours a day instead of 24 so that gives us some wiggle room during the day for him to not be connected to that and have a little more freedom. We are still crossing our fingers and praying that things will still turnaround GI wise and this whole TPN issue ia still very short lived. Regardless, we are anxious to be home and get back in to a "normal" routine whatever that is! ;)

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