This is a chronicle our everyday life as we live, laugh and love raising our teenager, our toddler and our special needs baby. Normal isn't always what it seems...

Tuesday, February 18, 2014

Say a little prayer

     Over the past 18+ months, our life has been incredibly busy and I have not had the time that I would've liked to have kept this blog updated. Hopefully that will change but I wanted to give a quick update about an upcoming test we have scheduled. 
     During the past year, Lydon has continued to have GI issues although they have seemed to worsen over the last couple of months. His appetite has decreased and he frequently vomits; sometimes several times a day. We have previously tried every gastric emptying med available but Lydon has not responded to any of them. There is one medication that we haven't ever tried but it does not come without risks and side effects. Our GI specialist who is not only one of the best but one of the only pediatric  motility specialists in our area feels that this medication would help Lydon but bc of the risks associated with it, we must undergo a gastric emptying scan that proves that Lydon has poor gastric emptying or gastroparesis. Because Lydon is older now and is able to consume solid food, this test takes four hours to complete. So on Wed Morning, Lydon will have to consume an egg and two pieces of toast (which will be quite a feat if not impossible by itself) and then be strapped to the exam table while his stomach is scanned for four hours! :( We are asking our friends to pray that A.) Lydon can remain calm and not be upset or traumatized by the exam and B.) that this test will give us the information we need for this new medication.  We know without a doubt Lydon has poor gastric emptying, we see the repeated vomiting and comfort him when he cries with stomach pain from eating; but for this medication, we need the results of this test to prove it. Some days are better than others... We are just hoping this is one of his more typically "poor" GI days so that we can get the proof that we need.He deserves anything that can or will help him GI wise. He doesn't deserve to hurt. So if you will, add his name and ours to your prayer list tonight and let's bind together... Lydon Strong!! 

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