Just a quick update here.... Last week we struggled through the hand, foot and mouth disease. Lydon still faintly has the head to toe rash that he was covering him but thank goodness the blisters have all popped and are now peeling. He seems 100% better in that area compared to this time last week. However, he has still run a low grade temp (101) and today he has vomitted a couple of times. Never ending...guess that is par for the course so once again we will wait and see.
In other news, we saw a pediatric sleep specialist today. She was so thorough and knowledgeable. It was almost like she already "knew" Lydon and knew what to do. So refreshing!! She talked with me for a long time about his airway and respiratory issues and how that effects his overall wellness and quality of life when he is awake. We decided to start him on some inhaled steroids and hopefully knock out any potential lower airway constriction. Then in two weeks, we will go for a sleep study. At that point, we will discuss in more detail a couple of the options we talked about today. One of those being starting Lydon on oxygen at night. The doctor explained to me that with Lydons excessive sleep, he could still not be getting any Stage 3 REM or deep sleep which could and most probably does effect his daytime alertness and poor growth pattern. Growth hormone is secreted in Stage 3 sleep hence his continued growth failure. All in all, a lot to process but such a refreshing visit to have someone so knowledgable about what is going on in Lydons body and what to do about it in order to help him out as much as possible. On a side note, she looked him over and said that he had a very red throat and lots of drainage down the back of his throat. I will update when more info is available.