This is a chronicle our everyday life as we live, laugh and love raising our teenager, our toddler and our special needs baby. Normal isn't always what it seems...

Monday, March 11, 2013

Where we've been and where we're going

     Just wanted to touch base and update everyone who so faithfully follows us. Although I really dont have much "new" information.  There is a lot going on and during these times, we rely on all of your prayers and words of comfort and encouragement.  As you know, Lydon has had problems with his airway and vomiting literally since birth.  So, the day we have been waiting for could possibly be tomorrow. 
     Tomorrow morning, we will be meeting with this new team of docs to discuss Lydons history and current issues. Wednesday, this team of three doctors, an anesthesiologist and several OR nurses will take him back to the OR to scope him from top to bottom and see if  they can find the cause of Lydons airway issues and difficulties and come up with a treatment plan.  This will be the first time since infancy that Ly has been put under anesthesia at TCH. So, of course this is very nerve wracking for us. Equally unnerving is the fact that Lydon has had this procedure done before and we havent ever received anything too definitive. So, the fear of putting him under anesthesia coupled with the possibility of not getting the answers we need is overwhelming. We want our boy to be able to play without vomiting or gasping for air or becoming exhausted. We are praying and ask all of you to pray that this team will see what they need to see.  They will be a "new set of eyes" and like the good book says ..."Again, I say to you that if two of you shall agree on Earth as touching any thing that they shall ask, it shall be done for them of my Father which is in Heaven. For where two or three are gathered together in my name, there am I in the middle of them." Matthew 18:19-20
      Add to all of this the death this past week of my Pappaw and this Momma is ready for a break! Please remember in your prayers, my Dad who lost his best friend and my Mammaw who lost her companion of 63 years.  He will definitely be missed! I will do my best to update after tomorrows appointment. We were told we would literally be there all day and then be back there early Wednesday morning for the procedure.   Hollie has plans with some of her friends this week and our middle man Aidan will get to spend some time with Mimi and his favorite girl, Cousin Peyton.  Not exactly the way I had planned to spend our spring break but I guess it will all work out. For now, we will Keep Calm and Carry On! ;)

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